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Monday, 24 July 2017 18:57

Applewatch, Cochlear Implant for Usher Syndrome type 1

Written by  Max Patton
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When I first got my applewatch from the molly watt trust I was really excited, being profoundly deaf and registered SSI with usher syndrome type 1.  I hoped the watch would enhance my life tremendously.Setting the watch up was easy, even with my limited vision and it connected to my Iphone easily too. I was so excited , it felt like it was my Birthday or Christmas.

I had just had surgery for a new cochlear implant after being depressed for many years, the applewatch came at a time of positivity for me, a time where I had decided I actually did need an implant to enhance my life and give me more independence, the applewatch was a real bonus.

The applewatch enables me to feel vibrations on my wrist if anyone texts me, I can now access all notifications, which is so much easier for me as I often don't have my iphone in my hand.

My mum panics if she can't get hold of me , she likes to know I am ok , safe and sound !! I have now had my applewatch about 3 months , besides the easy set up to iphone it also connects to my cochlear implant via Bluetooth.  I experienced music for the very first time, it was amazing and I listened to different types of music to see what types of music to see what I liked the best.  Shazam is a really good app because if I hear music I like but I don't know what it is then Shazam tells me and I can then download the song. It really helps me because I can feel the vibrations on my wrist, like an alarm.

I don't like to put my phone under my pillow or cushion as this can be dangerous but with the watch on my wrist I can feel any vibrations directly to my skin and it alerts me quickly.  Because of my limited vision I often walk into lamposts or barriers or poles, especially if I have my phone in my hand while I am looking at maps and directions, however, my applewatch has made this much easier for me because now I just look at my wrist and I don't need to have the phone in my hand. I can check my phone through my applewatch without having to put my hand in my pocket to get my phone.

My new applewatch really helps with navigation and this will be even better when I get my guide dog as I won't have a spare hand for my phone.

I use the activity app to see how many steps and what distance I have covered, this helps with my wellbeing and it is much easier being on my wrist rather than on my phone.

Applewatch has really helped change my lifestyle for positive reasons, I worry sometimes when I am out on the streets , I am really independent but can't help but be a bit anxious on the streets with people stealing phones, applewatch means I can leave my iphone safely in my pocket, I feel much safer.  I use it to check the weather too.

The TfL (transport for London app) and train line app is amazing , I can look at my watch and know what time my bus is coming , I can see any cancellations or delays, this is such a help as I can't hear announcements made by bus drivers or on platforms or bus stations.

My mum and my brother text me a lot , they worry about me , my mum panics if she can't get hold of me and I will see like 5 or 8 missed face-time calls on my phone, but with the Apple Watch I know straight away if they have texted me. I can adjust the vibrations and Taptics which is great, so if I'm chilling on my sofa and maybe tired the vibration can be changed to tapping on the wrist to feel it more.

There are so many exciting apps to try, the next one will be Uber.  I often travel across London so if I ever get stuck I can use the uber app as I cannot phone and order a taxi.

I absolutely love my football , I can't wait for the season to start in a few weeks, one of the apps for the applewatch is to keep up with football scores and statistics of the match, this will help me a lot, as when I go to football it is very busy and not lit very well, so will save me getting my phone out and I can see all match scores and the latest football news on my watch. I am so grateful for this gift from the Molly Watt Trust.

I feel I would be lost without mine now.

I would recommend Molly Watt Trust to anyone with Usher Syndrome, this small charity is a great help to those with Ushers, not just for assistive technologies they fund but also for providing support, information and for bringing people with Usher together.

Thank you MWT

 

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