A A A Accessibility A A A A

Molly Watt Trust

Tuesday, 14 March 2017 14:59

The love of Unis

Unis came into my life when I was 16 years old.  Looking back I know I did not thoroughly embrace her, I also acknowledge the constant bullying and questioning of my needs had a huge part to do with the way I felt.

Having been born severely deaf and coping well with hearing aids and my daily support, having a service dog of any kind had never entered my mind, why would it?

However, at 12 I was diagnosed with Usher Syndrome meaning I was going from deaf to deafblind and along with that diagnosis came a whole multitude of change.

Unis was a huge part of that change.

I loved her the moment I met her but it took me along time to get my head around having her.

The fact that deafblindness is a hidden condition meant I had been able to hide my condition if I chose to and back then I chose to more often than not, after all I just wanted to appear to be like everybody else!

As beautiful as Unis was and is she made me stick out when it was the very last thing I really wanted.

Behind closed doors she was my everything, she understood me more than anybody, she was always there for me, she never doubted me accept on the occasions I refused to take her out with me - stupidly, back then I would rather fall over and hurt myself than be seen safe and sound with my guidedog.

I look back now and can see my being able to accept myself had been made harder by the thoughtless people around me in school.  They made my life miserable by offering no encouragement or reassurances that I was ok, that I was doing the right thing in having and using Unis as my sight diminished, in actual fact they went out of their way to suggest I did not need Unis and that I should return her.   Without a doubt these were the attitudes that made my life all the more challenging.

That was a time in my life I look back on rarely accept to say this disgraceful treatment of vulnerable children should never ever take place and if in my work I can make that never happen again my suffering was not for nothing.

Unis saw me through those hideous times, she knew how distressing I was finding life, she would sit at my side leaning on me so I knew she was close.  In my time of denial and feelings of depression and isolation she has been with me.

On days when I feel anxious she has been there to calm me down.  Snuggling up to her and stroking her beautiful silky fur has been assuring and also enabling.

Caring for Unis was initially overwhelming but doing so strengthened our bond.

I am never alone with Unis, she understands me better than anybody.  Unis knows when I am at my most anxious, she has been calming and encouraging and has made me go that extra mile on many occasions.

Unis has been more than my eyes over the 6 years I have had her, she has been my best friend, even my therapy, she has kept me sane through the most difficult times.

Sadly Unis has found working with me difficult over the last year and we have together reached the heartbreaking decision that she should retire and enjoy her retirement rather than struggle on looking after me now she has developed anxieties of her own.

Naturally I am devastated and hope my family can keep her as a pet when my new match is found.

Unis will always be special to me, we have been through so much together including some of the most unpleasant experiences in my life and for that I cannot thank her enough.

Even though she cannot deal with the pressures life as a guide dog brings she is still always here for me, she helps keep me calm and focussed on the days I don't feel I want to leave the house.  She knows I care more for her than anything and that I need to give her the same consideration and that means having to go out when I really don’t want to and strange as it might sound once I get out I always feel so much better.

Without Unis on those bad days I might have no need to leave the house and my mental health would absolutely suffer.

Before https://therapypet.org I would not call myself a ‘dog person’ in actual fact as a little girl I was quite afraid of dogs.  My parents bought a dog to try and help me over my fear, I accepted the dog but had little to do with her, however, when she died I was devastated and when the next family pet dog was brought home, the most gorgeous and fun boxer dog called Dexter I grew to love him, he grew to be big and bouncy but also incredibly affectionate and protective of us all.  Without Dexter I would never have opted for a guide dog and in effect missed out on all the positives they bring, not just in guiding me but in everything she has given me over the years.

 

Wednesday, 07 December 2016 07:23

A toolkit to enable deafblind to access the world

San Francisco in November was an amazing experience, not just because I got to speak in Silicon Valley to some of the very top people in digital at Qcon I also got to re-visit my friends in the Accessibility Team at Apple Cupertino and I got to learn so much more.

I did a short informal talk about how and what accessibility features I use to some of the team, some I have met before and to a few new faces, we also discussed the new apple accessibility website.

I was able to speak about features I like, things I don’t and to pass on some great ideas from those around me, in the hope we can all do our bit to make things even better not just for the Usher Syndrome community but for everybody.  If it works for minority groups it will work for the majority.

We then had a great questions and answers session.  I love this part of my work, the more curious people are the better the understanding of need and the better result for the end user. 

Apple products have enabled me to do so much so far.  I am proud to be a small voice that gets listened to and am very grateful of the time spent with the team in Cupertino. 

I was delighted to speak in great detail about the importance of ‘iPhone ready’ hearing aids and what that can mean to the deafblind, deaf, hearing impaired, hard of hearing - whatever term used, this connectivity is fantastic. 

Forty four different types of hearing aid now ‘work’ with iPhone which is awesome.  The one question I didn’t ask and which I wish I had is how many of the forty four are also ‘Applewatch ready’ as that really is the icing on the cake for the deafblind, with it’s prominent haptic abilities (vibration alerts on the wrist) and what for me make life a little safer and are very reassuring.  I love the fact my Linx2 have direct connectivity to all of my apple products including applewatch.

This whole conversation really got me thinking about how amazing my hearing aids really are having direct that connectivity and what it all means to me.

I think knowing just how much I benefit from these things makes me feel really frustrated for the many people I know who could also benefit as much from my set up / toolkit.

The more I looked at the list of forty four the more annoyed I became.

The main reason being, the number one brand provided by NHS England does not have even one model, yes ‘NOT ONE MODEL’ on that list of forty four meaning millions and millions are missing out not just on best technology but on enablement and inclusion to carry out so much more than these now very outdated and out performed hearing aids.

Neck loops and faffing around are simply not good enough anymore, particularly as incredible assistive technology exists with built in connectivity and has done so for many years now.  

Neck loops are fiddly and easily misplaced by the deafblind.  Many don’t offer direct connectivity and are anything but inclusive and most have to self fund these extras too, also radio aids to assist with hearing in more challenging situations like meetings, classrooms, offices and the various other places not environmentally friendly for hearing aids, more cost and often to the individual.  

Even with these things in place it is often not enough and then comes more expense for Government Services (Access to Work) who will need to fund STTR each and every time to enable accessibility.

How complicated is this system?  

An up to date pair of smart hearing aids is the answer potentially saving a fortune.

NHS England need to think about ROI when providing hearing aids.  Something even as simple as being able to use a telephone can give so much more in the way of enablement also employment, resulting in less unemployment, less mental health issues and most importantly less isolation.  

There is no price for confidence so NHS ENGLAND isn't it time you considered how far technology has come, consider all the things it can do and enable your patients.

It is a fact, confirmed to me by my deafblind trained social worker that all deafblind people should be issued with two pairs of hearing aids and two pairs of reading glasses because of the impact of dual sensory loss and the complete reliance on assistive technologies.  This is detailed in my own personal Deafblind Assessment. 

Sadly it seems few Health Authorities are aware or do they simply just ‘turn a blind eye or a deaf ear?’  Many in my position do not have two pairs of hearing aids and even worse often have hearing aids that are years old, denying them the opportunities to connect with modern enabling assistive technology, this really is not acceptable.  

Perhaps when considering that each and every deafblind hearing aid user should have two pairs of hearing aids, instead provide one pair of modern smart aids enabling an exceptional hearing experience, also enabling locational sounds, access to speech near and far, to telephones, to access not just the sounds to stay safe but to understand them, to hear inside what is happening outside, to adjust and understand environment, also to enable control of hearing aids via apps, all of these things all assist with the challenges of deafblindness.  Simply insist the hearing aids are insured.

I mentioned the add ons that dated hearing aids require like neckloops, radio aids.  My hearing aids need neither, sound is streamed through the outstanding connectivity from iPhone to hearing aids and my iPhone even acts as a microphone.

I was told some months ago by an audiologist the reason people with deafblindness who choose to have cochlear implants will usually get funding for two at a cost far exceeding that of top of the range hearing aids is to enable locational sounds for safety - shouldn't this be the same for hearing aid users?  

Best access to sound for safety reasons should be all, not based on which type of hearing aid required.  Safety is safety.

Outside can be a very frightening place when unable see or hear danger and not just for the deafblind person but also a potential danger to others.

I used standard issued NHS hearing aids from 18 months old until I was almost 21years old, I could access sound, I learnt to speak using those hearing aids and benefitted from all visual clues.

I was very typical of a deaf person, I coped ok.  However since my Usher Syndrome diagnosis at 12 years old and being registered blind at 14 years old I felt more deaf, I struggled, particularly with tiredness. Back then I didn't really know why.  I was told ‘Usher Syndrome is exhausting!’.

Today it is obvious, I could no longer lipread very well or benefit from facial gesture, from body language or from the many visual clues deaf people use.  I had to completely rely on my hearing aids and they just were not good enough.  

Sadly there are many struggling along just like I did but what makes it even worse is they are now much more aware of what ‘Smart hearing aids” can offer they just cannot access them!

It is time for NHS England to not just be aware of the everyday challenges to those living with deafblindness, the real impact blindness has on somebody already deaf, how isolating a condition it is then it becomes clear to see that each person should have access to the very best in hearing aid technology.

Helen Keller’s quote from all those years ago ‘Blindness separates people from things, deafness separates from people’ is very true, however best technology can now not just ease isolation but enable inclusion.

I feel very privileged to have the very best in hearing aid technology, it enables me to be confident in my work.  I also feel very passionate that others like myself should also have access to the best.

My smart hearing aids are more than just hearing aids they are literally my ‘Linx2Life’. 

Smart hearing aids and apple products are accessibility tools for people like myself, they are not flashy gadgets they are essential for the everyday challenges faced.

I'd like this post to reach Goverment, to be read by NHS England, Access to Work, Social Workers working with the deafblind, Audiologists with deafblind patients, Occupational Therapists working with the deafblind and to anybody else I have missed in the care sector.

We have to make life inclusive.

Please share..

Thursday, 19 May 2016 06:55

Global Accessibility Awareness Day 2016

Usher Syndrome for me means my whole world is accessed via accessible assistive technology.

A year ago to the day I was fitted with Resound Linx2 hearing aids.  It has been quite a year, a year that I have experienced some amazing things.

I was born deaf so very used to wearing hearing aids and I coped pretty well.  Great support as a child, I could speak well and on the whole was doing pretty well at school, I accepted deafness, I knew no different.  However things changed upon my usher diagnosis.

As my sight went I felt as though my hearing had deteriorated too, thankfully this was not the case but in actual fact I had lost my ability to hear with my eyes.  I couldn't lipread, i couldn't see body language or gesture properly.  I visited audiology to be told my hearing was stable so I continued to use the same hearing aids, I then realised how much I had relied upon my vision to help me hear.  I could no longer see much and I was really struggling to hear and there I was expected to just get on with it.

To say it was difficult is an understatement so I isolated myself, the world was a frightening place when you cannot see or hear.

I look back now and it makes me angry to think this is so unnecessary knowing so much more about the available enabling technology.

Had I been fitted with Linx2 when I was diagnosed with Usher Syndrome my blindness would not have impacted so heavily upon me.  The clarity of these hearing aids, their ability to enable spatial awareness, to have several settings changeable depending on environment instead of feeling more deaf and more isolated than I had ever felt as a deaf person I would have felt more confident in my ability to hear and to trust my hearing.

Linx2 bluetooth connectivity has enabled me to use a telephone for the first time in my life and to hear clearly, I was 20 years old before I could make a phone call with confidence and to hear the voices of my family properly, things most people take for granted.

I can now localise, I know where sounds come from.  Before I was blind I would hear sound and often need to look all around to find the source, looking all around is no longer an option with only 5 degrees of sight left so this feature is priceless.  I can be out and about with guide dog Unis and hear the sounds of danger, I can also hear the sounds I've missed over the years, I can hear birds sing and dogs bark, I can hear aeroplanes and the more important things I can hear voices, the voices of my family so clearly.  I can hear new tones, I hear music, I can hear mood and picture atmospheres and so much more.

Blind people rely on their hearing and deaf people on their sight and yet deafblind people like myself are expected to "make do" to get by.  As if life isn't tough enough with dual sensory impairment, surely we should be entitled to technology that will enhance our lives, to enable us to get on as best we can.

Linx2 enable me to access so much more.  With full connectivity to my iPhone and applewatch I can now access lots of useful apps developed to assist the blind, something I could not do with my old hearing aids.  

For me blindness is the most challenging part of my condition, there is no cure for it, it affects how I personally access information and also my mobility.

There is no cure for my deafness either but the hearing aid technology I use has been life changing so not the issue it was for me.

My interest in assistive technology and accessibility heightened on my Usher Syndrome diagnosis.  Being only 12 on diagnosis and then registered blind at 14 I had already begun strategising and experimenting with assistive technology as it enabled me to "fit in" as best I could.  

I see myself as fortunate to be born at a time when technology was good and am thankful it continues to get better and better, sadly for many accessing the best enabling technology is all too often out of reach financially which is very sad.

In my mind best technology is the only way forward and long term would work out so much more beneficial to all.

More people with Usher Syndrome would have the ability to be active members of society.  Able to get out and about with confidence, work in different environments, use a telephone, communicate confidently rather than be home, unemployed often feeling isolated and depressed.

Technology should not be "frightening" to anybody it should be embraced by all it is not just fancy gadgets for people like myself, with other disabilities and for the elderly it is enabling.

I am deafblind, I am 21 years old and technology has given me my life back.

I am hearing with the most amazing technology, technology I'd dearly like for others who would benefit from them.  I am able to access lots of information via my iPhone and Applewatch, I am even seeing things with my 5 degrees of vision, things I haven't seen in years via the Ricoh Theta s 360 degree camera.  This little camera enables me to take a 360 degree picture which appears on my iPhone screen, I can move the picture around with my finger to see a whole screen of information.  A strange experience for me the first time I used it but an amazing experience I can only describe as seeing an atmosphere, zooming in on every area of my screen.  It gives me a memory of peripheral vision, something I lost almost 8 years ago, absolutely amazing.

I cannot imagine my life without my trusty MacBook or my iOS products they enabled me to access my education, to reach out to others and to maximise my abilities as a deafblind person and more excitingly these technologies keep improving 

I love teaching others how to use the technology I am lucky enough to enjoy, I want others to understand what technology offers and I want those in technology to understand the often unique needs of people with sensory impairment, particularly Usher Syndrome and deafblindness. 

Whilst accessible technology is available and amazing it remains that far too many websites are not accessible, even with fantastic technology.  This is an area that needs to improve and an area that interests me.

There is no reason why it remains that many educational intranets and government websites are inaccessible.  Still many of the most important Social Media platforms are not fully accessible and this needs to change.

I myself was denied my University education and in this day and age this is absolutely not necessary.

It is refreshing to know there is now a Global Accessibility Awareness Day as it must means Accessibility is firmly in the minds of many going forward and this is absolutely good news.

A really is for Accessibility...

 


  

Donate

 

To support the work of MWT please click on any of the Donate buttons below or alternately you may send a cheque made payable to Molly Watt Trust and sent to Queen Anne House, 25-27 Broadway, Maidenhead,Berkshire, SL6 1LY.

All donations and support are gratefully received.

Please complete this form if applicable so that we may claim an additional 25% in gift aid.

 

 

Donations for the Molly Watt Trust help those with Usher Syndrome

Molly Watt Trust - Helpling those with Usher Syndrome

Paypal Donations to the Molly Watt Trust

 


 

 

Recent Blogs

Is the NHS listening? Usher Syndrom…

We met a lovely lady from Northern Ireland at a Molly Watt Trust ‘In it Together’ event in Edinburgh in October 2015, she has been a hearing aid user since...

Read more...

The love of Unis

Unis came into my life when I was 16 years old.  Looking back I know I did not thoroughly embrace her, I also acknowledge the constant bullying and questioning of...

Read more...

A Visit to ATOS London Offices

I recently visited the ATOS London Offices, for an appointment set up by my Mum, Jane. We were there to meet with Dr McKillop to discuss varying issues and negative experiences...

Read more...

Mario's day to day life with Usher S…

My day to day life with Usher Syndrome (Retinitis Pigmentosa) is a constant fluctuation between moments where I can ‘get by’ and moments in which my disability presents real challenges...

Read more...

Disjointed Care or Digital Data?

I was delighted to be invited to meet with Digital.Health London to discuss a variety of things relating to my journey with the NHS and the various services. It certainly got...

Read more...

Bali - Sound Sensations

At the end of my work and networking trip to the other side of the world, Mum and I decided on a a trip to the beautiful island of Bali...

Read more...

Usher Syndrome / Christmas Challenge…

Hello, my name is Josh Parker and I have Usher Syndrome type 3. Most of you reading this probably already have an idea what Usher Syndrome is, so I’ll keep...

Read more...

A toolkit to enable deafblind to acc…

San Francisco in November was an amazing experience, not just because I got to speak in Silicon Valley to some of the very top people in digital at Qcon I...

Read more...

Singapore Airlines - Never again

I blogged about my not just poor but disgraceful treatment by Singapore Airline cabin staff on 13 November during my flight, Heathrow to Singapore.  I very unpleasant start to travel...

Read more...

Singapore Airlines a Very Unpleasant…

13th November, the start of my adventure to the other side of the world.  It had been just two days since Mum and I had come off a plane from San...

Read more...

Deafness makes you more blind

My name is Colin Hetherington and I suffer with Usher Syndrome which is retinitis pigmentosa (blindness) which gives me all sorts of daily troubles from glare tonight blindness, headaches flashing...

Read more...

Facebook - Anti Social Media!

Dear Facebook I am a 22 year old who struggles with accessibility. I am registered deafblind, however, I was not born deafblind but deaf.  What that means, to you, is that I...

Read more...

iOS10 Accessibility

Dynamic text galore! As we all know Apple products, get fairly regular software updates.  I had read and heard a few things about iOS 10, but was intending on waiting to experience...

Read more...

My Trip to Parliament

My partner Lyn decided that we should head for the big smoke to celebrate my 50th Birthday.  We are both have guide dog owners and both love London. I used to...

Read more...

University: To Listen, to Learn, to …

I have been asked over and over why I didn't complete my initial dream to be a primary school teacher and for some time it was a sore subject, however...

Read more...

I was hopeful but disappointed

My hopeful journey into the Wireless Bluetooth hearing aid world.   With Danalogic ifit cs71w hearing aids, Resound phone clip+ and a mini mic. I started off by asking my local NHS ...

Read more...

Being an Usher Mum

Being an Ushers Mum.  In 2011 I went for routine eye appointment and after a small discussion, the optician wanted to refer me for some tests.  I immediately had an in house...

Read more...

BA listened please listen more

After my recent report regarding very unacceptable treatment whilst flying British Airways Premium Economy to Las Vegas in May I’m very pleased to announce that they have at least changed...

Read more...

Centre Stage Applewatch

AppleWatch and smart technology are brilliant for people with Usher Syndrome!  I have Usher Syndrome, which means I was born deaf and in the last ten years I have lost most...

Read more...

Unacceptable Audiology

I have Usher Syndrome, I am deafblind and my condition is degenerative. The fact that it gets worse and my abilities change all the time means that I have to make...

Read more...

Life is a Rollercoaster

As part of my ‘rollercoaster ride’ I have experienced huge ups and downs over the years. A husband and four children comes with challenges but nothing out of the ordinary accept...

Read more...

Molly Addressing Accessibility with …

My outward journey to Las Vegas was nowhere near the way it should have been. The necessary call to ‘special assistance’ had been made by my mum prior to the trip...

Read more...

Usher to Usher

I hope you don't mind but after researching usher's syndrome and RP I came across your blog and I wanted to introduce myself. My name is Bethanie (or Beth), I'm...

Read more...

Applewatch for Award Winning Paracli…

Hi I am John Churcher and I have Usher syndrome type 2. I have always had a hearing loss and was diagnosed with retinitis pigmentosa at the age of 14...

Read more...

Safe and Secure with Accessible Ring…

About a month ago The Ring Video Doorbell was brought to my attention and I was asked if I'd like to try it. I love technology, particularly assistive and enabling technology. What...

Read more...

Global Accessibility Awareness Day 2…

Usher Syndrome for me means my whole world is accessed via accessible assistive technology. A year ago to the day I was fitted with Resound Linx2 hearing aids.  It has been...

Read more...

Learning from each other - 'In it To…

Walsall 2016 'Hear no. See no, Techno' Jo Milne, Colin Hetherington and Me. Once again we were blessed with a room full of people all on similar journeys.  With Usher Syndrome or RP...

Read more...

Ready to meet others with Usher Synd…

I decided I would like to meet some fellow ushers as never met anyone and my sight has been steadily getting worse . I had support worker for blind visit...

Read more...

Why Access to Social Media Matters

I have been asked many times what my favourite social media is and why and my answer is always Twitter. The reasons I like Twitter are firstly from an accessibility view...

Read more...

What is in a logo

We are often complimented on our logo. Molly designed the logo for our charity. Below she describes how and why she designed it. The first thing you will notice is the Molly Watt...

Read more...

Applewatch - Thank you Molly

My son read Molly's applewatch blog to me last year.  She made everything sound so easy and to be honest I didn't believe it. My son kept on and and and...

Read more...

San Francisco Adventure

San Francisco had been on my long list of places to visit and I was lucky enough to go on a girls only adventure with Mum and my younger sister...

Read more...

Effortless Applewatch One Month In

So I've now had my Watch a month and the best way I can describe it is 'Effortless.' When I first got it all in its beautiful packaging it felt like...

Read more...

When a Picture is more than a Pictur…

Taking a photo to me is not just a picture, its capturing a moment, capturing sight I no longer have.   I take a picture and then take it apart to...

Read more...

Applewatch Awesome but Hearing Aids …

I recently received an applewatch from The Molly Watt Trust, via their GlobalGiving project. I love gadgets. I have ushers syndrome type 3 which is gradually robbing me of both my...

Read more...

Applewatch Accessibility and Connect…

To quickly introduce myself, am Colin and I have Usher Syndrome type 3, the rarest of the Usher types.   I recently received a letter to collect a package from the...

Read more...

A Simple Tap or Touch can Mean so Mu…

Something I am often asked at my presentations is what is the best and most acceptable way to approach or get the attention of a deafblind person. My answer would be...

Read more...

Linx2, Earbuds, Earpods - Definitely…

I recently read a piece virtually comparing hearing aids with earBuds / EarPods and hearing aids with glasses! I read the piece several times and still thought it strange.  I'm 21...

Read more...

Me, Myself & My Guide Dog x 3 - …

Recently I was invited to appear at the Sense Awards at Kings Cross London.  I had been nominated by friends and colleagues from the Usher Syndrome and RP Community, I have...

Read more...

Josh Dealing with Usher Syndrome Typ…

Josh’ Blog for The Molly Watt Trust Hi, I’m Josh. I’m 22 years old and I have Usher Syndrome type 3. I was born with normal hearing and vision, unlike most...

Read more...

The Jekyll & Hyde of Usher Syndr…

I had never heard of Usher Syndrome until I worked with a girl who has it.   If I’m honest I saw her come in and out with her guide dog...

Read more...

Can Deafblind Access Wayfindr?

An audible App or program for the blind, accessible to deafblind, using hearing aids? There was a time when accessing such a thing would have been impossible and in my lifetime...

Read more...

"Access to Tweet, Tweet to Acce…

I was delighted to see that at last Facebook allows dynamic text for those of us who use iOS and rely on it. Finally those who had been isolated from family...

Read more...

A "Resounding" Success

When I wrote my Applewatch blog back in April this year, I had no idea of the interest it would generate, nor the amazing people or companies it would lead...

Read more...

Please, Please, Please Consider All …

I was prompted to write a blog on reading this quote:  “For people without disabilities,technology makes life easier.  For people with disabilities technology makes things possible” (IBM training manual 1991). That quote...

Read more...

Edinburgh Social Event 3 October 201…

Best Western Kings Manor Hotel, Edinburgh Saturday 3 October 2015 was a great success. It was brilliant to see old and new faces and a time to share some news and...

Read more...

Usher Syndrome - The Importance of A…

I have now realised after many years that always trying to fight Usher Syndrome certainly does not work. I don't know if it's a pride thing or that I am just...

Read more...

Usher Syndrome Awareness

Usher Awareness Day Sept 19th 2015 Dominique Sturz, Usher Forum Austria My name is Dominique and I am the mother of a 19 year old daughter with Usher Syndrome, she is a...

Read more...

Trials and Tribulations of an Usher …

As some of you may know, Jake our sixteen year old son was diagnosed with Ushers Type 2a 3 years ago, at the time Trev and I thought our world...

Read more...

I can no longer hear with my eyes - …

I was recently talking about cochlear implant and was told the reason those of ANY age with Usher Syndrome (deafblind) that are profoundly deaf and wanting cochlear implant and who...

Read more...

We Own The Equinox 19 September 2015

Our sincere thanks go to Mark Dunning and his team at the Usher Coalition for their hard work in putting Usher Syndrome on the calendar thus resulting in so many...

Read more...

Hear No, See No, Techno!

I recently read about somebody I know who has Usher Syndrome and had got into a very scary situation. Having Usher Syndrome this sort of thing is very easily done. An accident...

Read more...

"5 degrees and Me"

Another major hurdle, I've reached 21 years old and I still have "5 degrees" of vision still remaining. I know it doesn't sound great and possibly terrifying to many but...

Read more...

The Amazing Positive Power of "…

Towards the end of last year I started communicating with Dan via Twitter.  Dan was working with Radio 4's In Touch and was keen to get me on radio to...

Read more...

Communicate Don't Assume

Up until 12 I believed I could do most things, why not, I was deaf but with hearing aids could hear.  It did make communication an issue sometimes, group settings, noisy...

Read more...

A Mum's Numb Despair to Pride in Sho…

How does a mum feel when she's told her 12 year old daughter is set to go blind - NUMB. First things first, get head around the condition, hate it with...

Read more...

Pushing My Boundaries

Pushing Boundaries This might not be seen as pushing boundaries for some....... However,  for myself it was like jumping out of an aeroplane! I have always admired a local photographers work and I...

Read more...

Access Illegally Denied - Guide Dog …

I was matched with Unis when I was 16 and over the past 4 years have been subjected to terrible discrimination simply because people either do not follow the law...

Read more...

C'est la Vie

On February 24th 2004 aged 22, my life changed dramatically in one day.  I went from being fully independent living life,  being care free, I had a vague  plan as...

Read more...

Asking for Help

One of the hardest things for anyone to do, is admit they need help.  It doesn't matter if you have a disability or not, if you feel like a burden...

Read more...

 


 

 

Bradley Timepiece - Usher friendly timepiece - Molly Watt Trust

©2017 molly watt trust, registered UK charity 1154853